Rickets Support Group

Support groups are important in life. Whether that be because you were diagnosed with a disease, a loved one has a disease, or you just need general support, a support group can provide encouragement and love. A support group is a group of people that meet together for an extended amount of time with the purpose of letting people know that they are not alone in whatever they’re going through. There are support groups for basically everything, but this blog post will focus on rickets support group. 

A support group is necessary and important for all parts in life, especially when one is diagnosed with a disease or for one living with it's effects. 

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There are several online forum or chat groups that people who suffer from rickets can post on. They then can receive encouragement or advice from other members of the group. A good example of this is this website http://www.mdjunction.com/rickets-and-osteomalacia . There are many other similar websites. Since rickets isn't very prevalent in Western culture, there are few support groups that get together and meet in person, but I imagine if one searched hard enough they could find one, especially if they live in a big city. Also, there is always the option of starting your own support group. 

Know that if you or your child is suffering from rickets, there are people who are going through the same thing you are. You're not in this alone. 

Rickets Apps

Technology serves us in numerous ways, both through education and entertainment.  There are information apps about rickets that are available for download. Even though rickets isn’t a large problem in developed countries anymore, there are still a few apps that provide information about the disease.

For example, there’s an app on Android phones simply titled “Rickets.” It includes a basic overview of what rickets is, what causes it, the symptoms, risk factors, treatment, and prevention. The information is simply written, and limited. But it is a good, basic overview for the general population.

The logo for "dminder", a great app to monitor your vitamin D levels. 

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Also for Android, there are several apps that allow you to track your daily intake of vitamin D. For example, “SunSmart” records how much time you spend in the sun and estimates how much vitamin D you obtain during the day. From there, you can adjust how much time you spend outside and how much vitamin D you consume. An app called “dminder” takes your geographical location into account and tells you much time you need to spend in the sun. It also takes vitamin D supplements into account.

There are also more general apps, like “Your Vitamin-Mineral Guide”, that include information about several vitamins and minerals. Education about things like this is very important.  

Any of these apps can be found on the Android app store, or the Google Play Store. 

Rickets and the Nurses Role

A nurse who is taking care of a child with rickets must be informed. They should know about the different types of rickets, the symptoms, the pathophysiology, and how rickets are treated. And in turn, they must inform the parents of their patients about what they need to know.  

It's a nurses role to inform parents about rickets and the importance of vitamin D

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It is critical that a nurse works alongside with the parents to ensure that the parents understand proper nutrition, vitamin supplementation, exercise, and sun exposure relating to the treatment of rickets. Education is a large part of this. When a child is born, it’s important for a nurse to inform the parents that if they plan on only breastfeeding, they will need to supplement with vitamin D, seeing as breast milk alone does not provide the daily recommended amount. Rickets is treated with vitamin D supplements, so a nurse must have adequate skills to teach the parents the importance and significance of those supplements as well.  

Additionally, a nurse who is treating a patient with rickets should ensure that their patient is comfortable, and help them deal with self-concept issues if any arise. 

Dietary Considerations and Rickets

Since rickets is a nutritional disease related to a deficiency of vitamin D, it is important for a person who has rickets to eat foods rich in vitamin D. Foods that contain high amounts of vitamin D include fatty fish, cheese, egg yolks, and other foods fortified with vitamin D. Nowadays, these can include cereal, some dairy products, orange juice, or soy milk.

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 It is also recommended that the diet includes the contribution of other vitamins and minerals, such as vitamin C.  These foods can include bell peppers, leafy greens, and other vegetables. Fruits such as kiwis, papayas, and berries also contain high amounts of vitamin C.

Avoiding foods that are high in white sugar is often advised because these foods hold very little benefits, and definitely are not high in vitamin D or C.

Consuming enough vitamin D while pregnant can also be crucial in ensuring that your child will not develop rickets later in life. Make sure to eat a diet rich in vegetables that have not been overcooked, which can cause them to lose some of their nutritional properties. After the baby is born, make sure to include a vitamin D supplement in addition to breast milk. Breast milk on its own does not include the necessary 400 IU of vitamin D that a baby needs daily.

Of course, overall, follow the diet regiment that is advised by a medical professional.

For more information please read

http://en.biomanantial.com/rickets-children-diet-and-treatment-for-its-cure-and-prevention-a-2419-en.html

Rickets Treatment

            Most cases of nutritional rickets are caused by vitamin D and calcium deficiency. So, it’s logical that the treatment for is rickets is to increase a child’s daily intake of vitamin D and calcium. The levels of these nutrients can be increased by including more vitamin D and calcium rich foods in the child’s diet, or having the child take a supplement. Foods that are good sources of vitamin D include fatty fish such as tuna, mackerel, or salmon, cheese, egg yolks, and some types of mushrooms. Additionally, many foods are fortified with vitamin D nowadays, like cereal, milk, or even orange juice. Increasing the amount of these foods in a child's diet will help to lessen and eventually eliminate symptoms of rickets. 

Exposure to sunlight increases vitamin D levels as well, so you may be advised to have your child spend more time outside.

More specifically, treatment for rickets can either be treated over several months or in a single-day dose. If the first method is chosen, a certain amount of vitamin D is given to the child over a course of a few months. The second method is divided into 4 to 6 oral doses in one day.

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It’s important to see a doctor to be treated for rickets. They will know how much vitamin D and calcium that your child will need. Too much vitamin D can lead to hypercalcemia (too much calcium in the blood), which can cause nausea, vomiting, and poor appetite. Frequent urination, kidney problems, and weakness may also result from too much vitamin D.

          If severe deformities have occurred because of rickets, orthopedic correction may be required. Correction will normally occur as the child grows, and the symptoms of rickets will disappear. However, if a child goes too long without being treated, lifelong consequences may result. These include spinal deformities and a shorter stature. Thankfully, rickets is easy to identify and cure. Treatment has a very high success rate. 

For more information, please read:

http://emedicine.medscape.com/article/985510-treatment

or

http://www.nhs.uk/Conditions/Rickets/Pages/Treatment.aspx

Signs and Symptoms of Rickets

Rickets manifests in several different ways. A baby might seem “floppy”, or floppier than normal. A child may complain of bone tenderness or pain, or they may be resistant to walking or tire easily. Bones affected by rickets break easily, so if a child breaks a lot of bones that could be a sign of rickets. Rachitic rosary, the enlarged ends of ribs that appear beadlike, and Harrizon’s groove, a horizontal line that is seen where the diaphragm attaches to the ribs, and also signs of rickets.

In this image, both rachitic rosary and Harrizon's groove are visible. The bead-like bumps on the baby's chest is rachitic rosary, and the line on his abdomen in Harrizon's groove.

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Additionally, hypocalcemia, or low blood calcium levels, can indicate rickets. If the calcium levels are low enough, it may cause muscle cramps, twitching, tingling, or even seizures (though this is rare).  A parent might notice soft spots in a child’s skull that otherwise shouldn’t be there. A child’s wrists and ankles may begin to widen, or there may be other spinal, pelvic, or cranial deformities. The height and weight of a child can also be affected by rickets, the child will be shorter and lighter. Muscle weakness may be a sign of rickets as well. Due to the poor absorption of calcium, dental deformities or delayed dental growth may appear. The enamel on the teeth will be weak, so there is an increased risk for cavities. As I’ve mentioned before, a protruding breast bone, or pigeon chest, and bowed legs are some of the most well-known rickets symptoms. Rickets symptoms and signs are mainly physical, making it fairly easy to identify the need for medical help.

For more information please read http://www.medicalnewstoday.com/articles/176941.php or http://www.medicinenet.com/rickets/page3.htm#what_are_rickets_symptoms_and_signs

Rickets Diagnosis

Rickets is diagnosed in a clinical setting by professionals. Initially, a doctor may press gently on the child’s bones to see if they’re soft. In particular, they’ll observe the skull, legs, chest, wrists, and ankles. Children with rickets often have softer skulls, bowed legs, a pigeon chest, and wider and thicker wrists and ankles. A pigeon chest is when the chest begins to flatten causing the breastbone to protrude. 

The physical manifestations of rickets are illustrated here. The pigeon chest, wide joints, bowlegs, and spine deformities are a few prominent features. 

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If rickets is suspected, a blood test will be done. This test will measure the levels of calcium and phosphorus in the body. A test may also be done to measure the amount of parathyroid hormone. If the levels of parathyroid hormone are high, that means there isn’t enough calcium in the blood and the body will start taking it from the bones. X-rays of long bones may also be taken. The x-rays and blood tests results are taken into consideration, and if the signs are all there, the child is diagnosed with rickets.

With treatment, rickets is easy to cure. But if it goes untreated, it can lead to long-term skeletal deformities, an abnormally curved spine, or dental defects. It can also poor growth.

For more information on Vitamin D and Rickets, please read: http://patient.info/doctor/vitamin-d-deficiency-including-osteomalacia-and-rickets-pro